This blog was inspired by 31 for 21 & is about my wonderful family.

"As a mother, my job is to take care of what is possible & trust God with the impossible." ~Ruth Bell Graham

"Never look down on someone, unless you're helping them up!"

Tuesday, October 2, 2012

Day 2

Please, please, PLEASE use people language when talking about people with Down syndrome.  My son is not Down syndrome.  He is not a Down syndrome child.  He is not a Downsy.  He doesn’t have a “touch of the Downs” (you either have Down syndrome ~which means you have an extra copy of the 21st chromosome~ or you do not…it’s that simple).  And he is not ‘special needs’, he HAS special needs.  He is a boy that has Down syndrome.  Having Down syndrome doesn’t define who he is.  He is just like a typical 3 year old.  He has his likes & dislikes.  He loves to play, swim, ride the carousel, eat junk food…etc, just like most children at this age.  He also LOVES his brother & sister.  He loves to play with them, but he also has disagreements with them, too.  Loves tacos, HATES green beans…doesn’t all toddlers?  When I say he has special needs, it just means that his needs aren’t the same as a ‘typical’ child of his age.  For instance, Troy can not drink out of a cup.  He can bring liquid up in a straw, but he spits it out immediately.  Therefore, he has to use a sippy cup.  And not just any sippy cup, he has to use a certain kind.  YES, we have tried for YEARS to get him off the sippy cups, but he’s not ready!  In time, he will learn how to drink out of a straw & out of a regular cup.  That’s one thing I’ve learned, you have to pick your battles with Troy.  He also has to wear diapers.  He’s not ready to be potty trained (yep, tried that, too…again, he’ll do it when he’s ready).  But my message is please, think before you speak.  I’m sure you have one unique something about you, something you don’t want to be defined as.  What if the world referred to you as “that quality” instead of who you are?  You’d be upset, right?!  I thought so.  I hope that next time, & from now on, you’ll use people first speech.  {I know, we mothers of children with special needs are sensitive, aren’t we?  Well, sometimes, you have to be.  We’re trying to educate the world about our children…to help everyone live their lives to their potential, & let’s be honest.  Words hurt!} 

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