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This blog was inspired by 31 for 21 & is about my wonderful family.

"As a mother, my job is to take care of what is possible & trust God with the impossible." ~Ruth Bell Graham

"Never look down on someone, unless you're helping them up!"

Thursday, October 6, 2011

Down syndrome awareness month

     It just breaks my heart that Down syndrome awareness month is overshadowed by breast cancer awareness month.  In my opinion, Down syndrome awareness month should be in March.  Don't get me wrong, I am ALL for breast cancer awareness!  However, many people are aware of breast cancer, not many are aware of the FACTS about Down syndrome.  I know that breast cancer can be a deadly disease, it has hit my family, too.  But in reality, so is Down syndrome.  How, you may ask?  Well, just have a look at the statistics.  1 in approximately 700 children that are conceived have that something extra.  But if you look around, do you see 1 in 700 people LIVING with Down syndrome?  Nope!  That's because a whopping 90% of the parents who receive a prenatal diagnosis actually terminate the pregnancy.  Why?  In my opinion, it's because they are truly ignorant about the subject.  They may hear the grim & outdated statistics that their doctor gives them, or they may read outdated material on Down syndrome.  I must admit that I had a CVS test to determine if my child would be chromosomally enhanced, but I didn't do it to decide whether or not to terminate.  I just needed to be prepared & I'm glad I was.  However, nothing has prepared me for the pure love, joy, & happiness my son has brought to my life.  He has taught me so much already, & he's only 2 1/2!  The facts or myths won't prepare you for the positive things you will experience in raising this miracle from God.  Sure, my son was part of the 40% of people born with DS that have a CHD (congenital heart defect).  But that's just an obstacle in the road that one day we will overcome.  This journey has taught my family more than we could ever imagine & it has just begun.  Now, a few years ago you could've told me that I would have a child with special needs & my life couldn't possibly be happier for that & I would've thought you were insane.  Now I can't imagine my life without him.  As you know, I'm 11 weeks pregnant with my 3rd child.  On my very 1st OB appointment, I advised him that I didn't want any genetic testing.  He didn't question me, he said that it was totally up to me.  Why wouldn't I test?  Well, I see it this way.  God has trusted me, He has given me His favor, in blessing me with Troy.  So if He thinks that I deserve to be blessed double by having another child with DS, then so be it!  :)  
I really hope that I am able to reach just one soul in my quest this month.  I want to change the hearts, minds, & souls of those who are ignorant to the true facts on Down syndrome so that my Troy, & all of the people that I love that happen to have that something extra, will be respected.  They deserve that.  ♥

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